Health careICI staff affiliated with Children's Hospital Boston have created several publications regarding services for children and youth with special health care needs. Parents, health care providers, school nurses, and youth themselves can use this information.
Publications related to Health care
The issue of the MassWorks newsletter discusses MassHealth CommonHealth and the options it offers working people with disabilities.
Planning for Adolescents with Special Health Care Needs and Disabilities: A Guide for Health Care Providers
This resource guide helps health care providers support adolescents as they move into adulthood
David Helm and Sandra Friedman of the Institute for Community Inclusion published a new book entitled End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Their book brings back the focus of palliative care decisions on respect, dignity, and the needs of the person with whom, or for whom, decisions are being made.
Resource Guide 9
Clinicians from Children's Hospital Boston answer basic questions parents may have about mental retardation (MR). Includes national and New England resources.
Improvements to the SSDI and SSI Work Incentives and Expanded Availability of Health Care Services to Workers with Disabilities under the Ticket to Work and Work Incentives Improvement Act of 1999
Policy Brief 2
This brief gives background information on federal income maintenance and health care programs, and describes the major provisions of the Ticket to Work and Work Incentives Improvement Act.