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Publications related to Health care


MassWorks 3

The issue of the MassWorks newsletter discusses MassHealth CommonHealth and the options it offers working people with disabilities.

Planning for Adolescents with Special Health Care Needs and Disabilities: A Guide for Health Care Providers


This resource guide helps health care providers support adolescents as they move into adulthood

End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities

David Helm and Sandra Friedman of the Institute for Community Inclusion published a new book entitled End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Their book brings back the focus of palliative care decisions on respect, dignity, and the needs of the person with whom, or for whom, decisions are being made.

Answers to Parents' Questions on Mental Retardation

Resource Guide 9

Clinicians from Children's Hospital Boston answer basic questions parents may have about mental retardation (MR). Includes national and New England resources.

Improvements to the SSDI and SSI Work Incentives and Expanded Availability of Health Care Services to Workers with Disabilities under the Ticket to Work and Work Incentives Improvement Act of 1999

Policy Brief 2

This brief gives background information on federal income maintenance and health care programs, and describes the major provisions of the Ticket to Work and Work Incentives Improvement Act.

Practicing Comprehensive Care: A Physician's Operations Manual for Implementing a Medical Home for Children with Special Health Care Needs


This manual offers practical advice and suggestions to help pediatric offices serve children with special health care needs.

Barriers to Transition Planning for Parents of Adolescents with Special Health Care Needs

Research to Practice 19

An examination of the transition planning experiences and concerns of family members of young adults with special health care needs.

Children and Youth Assisted by Medical Technology in Educational Settings: Guidelines for Care, Second Edition (Project School Care)


The step-by-step reference helps school nurses, classroom teachers, parents, school administrators, and health aides provide the care and support necessary to fully include students assisted by medical technology in school, including students who have HIV infection, rely on a ventilator, use tube-feeding, or require catheterization.

Employment Outcomes for People with Diabetes in the Vocational Rehabilitation System

Data Note 2, 2005

Approximately 18 million people in the U.S. have diabetes. This Data Note examines the employment hours and earning outcomes for people with diabetes who received VR services in 2003.

Transition Planning for Adolescents with Special Health Care Needs: Information for Families and Teens

Manual 5

Information, ideas, and resources for transition planning in the areas of health care, education, employment, and recreation. Includes suggested readings, a glossary of terms, and a summary of transition-related laws. Legal guidelines are drawn from Massachusetts and federal law.

Pervasive Developmental Disorders: PDD-NOS, Aspergers Disorder, and Autism, A Parent Information Booklet

Resource Guide 3

General background information and answers to common questions on PDD and Aspergers Disorder.

ICI: promoting inclusion for people with disabilities