Publications related to Health care
The issue of the MassWorks newsletter discusses MassHealth CommonHealth and the options it offers working people with disabilities.
Planning for Adolescents with Special Health Care Needs and Disabilities: A Guide for Health Care Providers
This resource guide helps health care providers support adolescents as they move into adulthood
David Helm and Sandra Friedman of the Institute for Community Inclusion published a new book entitled End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Their book brings back the focus of palliative care decisions on respect, dignity, and the needs of the person with whom, or for whom, decisions are being made.
Resource Guide 9
Clinicians from Children's Hospital Boston answer basic questions parents may have about mental retardation (MR). Includes national and New England resources.
Improvements to the SSDI and SSI Work Incentives and Expanded Availability of Health Care Services to Workers with Disabilities under the Ticket to Work and Work Incentives Improvement Act of 1999
Policy Brief 2
This brief gives background information on federal income maintenance and health care programs, and describes the major provisions of the Ticket to Work and Work Incentives Improvement Act.
Practicing Comprehensive Care: A Physician's Operations Manual for Implementing a Medical Home for Children with Special Health Care Needs
This manual offers practical advice and suggestions to help pediatric offices serve children with special health care needs.
Research to Practice 19
An examination of the transition planning experiences and concerns of family members of young adults with special health care needs.
Children and Youth Assisted by Medical Technology in Educational Settings: Guidelines for Care, Second Edition (Project School Care)
The step-by-step reference helps school nurses, classroom teachers, parents, school administrators, and health aides provide the care and support necessary to fully include students assisted by medical technology in school, including students who have HIV infection, rely on a ventilator, use tube-feeding, or require catheterization.
Data Note 2, 2005
Approximately 18 million people in the U.S. have diabetes. This Data Note examines the employment hours and earning outcomes for people with diabetes who received VR services in 2003.
Transition Planning for Adolescents with Special Health Care Needs: Information for Families and Teens
Information, ideas, and resources for transition planning in the areas of health care, education, employment, and recreation. Includes suggested readings, a glossary of terms, and a summary of transition-related laws. Legal guidelines are drawn from Massachusetts and federal law.
Pervasive Developmental Disorders: PDD-NOS, Aspergers Disorder, and Autism, A Parent Information Booklet
Resource Guide 3
General background information and answers to common questions on PDD and Aspergers Disorder.