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David Helm

ICI/UCEDD Director of Interdisciplinary Training
ICI/LEND Program Coordinator
ICI/PMU Co-Principle Investigator
Adjunct Lecturer, Harvard School of Public Health, Dept of Society, Health, and Human Development

B.A., College of William and Mary
M.A., Ph.D., Boston University

Dr. David Helm has been working in the disability field for over 25 years, with a background in medical sociology. He has worked with families on home training programs, directed programs for teenagers and young adults learning about work in their communities, and taught graduate and post-graduate students entering the field. Major research interests include professional education, relationship-building between health care providers and families of people with disabilities, and qualitative research. He has presented work at professional conferences throughout the U.S. as well as in Canada, Mexico, and overseas.

Currently director of interdisciplinary training at ICI, David also teaches and coordinates courses that are accredited at six area universities, as well as a course at Harvard School of Public Health and Harvard Medical School. He has served on numerous community and professional boards including the Association of University Centers on Disabilities as Chair of the National Training Directors Council.

ICI publications by David Helm

End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities

David Helm and Sandra Friedman of the Institute for Community Inclusion published a new book entitled End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Their book brings back the focus of palliative care decisions on respect, dignity, and the needs of the person with whom, or for whom, decisions are being made.

Answers to Parents' Questions on Mental Retardation

Clinicians from Children's Hospital Boston answer basic questions parents may have about mental retardation (MR). Includes national and New England resources. (6/2006)

Select outside publications by David Helm

Hagner DC, Helm DT. Qualitative methods for rehabilitation research. Rehabilitation Counseling Bulletin 1994;37(4):290-303.

Hagner DC, Helm DT, Butterworth J. This is your meeting: A qualitative study of person-centered planning. Mental Retardation 1996;34(3):159-171.

Helm DT, Shishmanian E. Information physicians need about early intervention. Children's Health Care 1997; 26(4):255-264.

Helm DT, Kiernan WE, Miranda S. Employment opportunities: Creative approaches. In: Pueschel, SM., ed. Adolescents with Down syndrome. Baltimore, MD: Paul H. Brookes Publishing Co. 1997:267-283.

Helm DT, Miranda S, Chedd NA. Prenatal diagnosis of Down syndrome: Mothers' reflections on supports needed from diagnosis to birth. Mental Retardation 1998;36(1):55-61.

Friedman S, Helm DT, Marrone J. Caring, control & clinicians' influence: Ethical dilemmas in developmental disabilities. Ethics & Behavior 1999;9(4):349-364.

Butterworth J, Hagner DC, Helm DT, Whelley TA. Workplace culture, social interactions, and supports for transition-age young adults. Mental Retardation 2000; 38 (4): 342-353.

Helm, DT. The measurement of happiness. American Journal on Mental Retardation 2000; 105 (5): 32-335.

ICI: promoting inclusion for people with disabilities